DONE...

Okay, so since the last update I have nervously been awaiting my appointment with the Radiation Oncologist, Dr. Wei. I had come up with my list of questions and was just ready to get the appointment over with. Ever since I met with him, before I even started chemo, I was not happy when he told me that I needed radiation. First of all, his reason for radiation was basically because the cancer had spread to my sentinel lymphnode, however, during surgery I had that lymphnode along with 19 others removed. Secondly, I wasn't happy because that makes reconstruction that much harder since I had my expander removed. It makes it harder because it hardens the chest wall which means we can't put the expander back in without having a muscle flap procedure which is a lot more painful and a lot more difficult. When he first told me I had to have radiation, I cried. I went to see my plastic surgeon to find out what my options were and that is when I found out it would be at least another year before I could think about having surgery again. I was really upset but then I began to come to terms with it. I figured that I went into this knowing that I was going to do everything I could possibly do to prevent the cancer from coming back. So, I knew that once chemo was over, I would wait 4-5 weeks and then I would begin radiation. Then the last day of chemo came and I knew that radiation was right around the corner and I had questions. I was just so nervous though going into that appointment, Dr. Wei thinking we are having a quick consult planning the next step only for me to let him know that I wasn't sure I wanted radiation, the reasons why and to question him. I know that is my right but I didn't want to feel like I was making the wrong decision so I needed to get my questions answered then decide what was best. Ryan picked me up and we headed over to the Cancer Center, my second home. We actually got there 15 minutes early so I thought for sure I would go back on time. An hour later, after watching people come in and go back, I was finally called back. We went back into an exam room and waited another 15 minutes. I could hear Sharlee and Dr. Wei talking outside the door and I wondered if she was giving him the heads up about what I was thinking. Finally, they came in. Dr. Wei started talking about radiation and the reasons to have it and not to have it. He told me that there is a gray area when deciding to have radiation when you have one positive lymphnode. He said that typically if the cancer on that lymphnode is under 2mm you don't do radiation but if it is 2mm or bigger you do and mine was exactly 2mm. Of course it was!! Anyway, he then began to say that I also had 19 other lyphnodes removed which I don't think he realized when we met the first time. He also said that there is no research or statistics to back up having radiation when there is only one positive lymphnode and you have 19 removed. He asked if I had any questions and of course I didn't because he had already answered every one I had written down. So, with that being said, I DON'T NEED RADIATION!!!!! I couldn't believe it when he said that. He said that he just couldn't justify doing radiation knowing that it wouldn't necessarily improve my survival especially since I am also going to begin taking Tamoxifen which is a hormone suppressing drug for 10 years. He said that he felt that I really had done everything I could possibly do to prevent my cancer from returning. Of course if it ever comes back, I will FIGHT again!! I couldn't believe that my treatment is finally DONE!!! NO MORE CHEMO AND NO RADIATION!!! I meet with Dr. Bhatia on the 25th and then I will really feel DONE!!! Lastly, when I left the Cancer Center I immediately called Dr. Stahlnecker, my plastic surgeon to set up an appointment so that we can begin to plan for reconstructive surgery!! I see him May 8th and there we will come up with a date for the 1st surgery which will hopefully be withing the next few months, after vacation of course because Ryan and I REALLY NEED a vacation :) So, with treatment being complete I only have 2 surgeries left and then this will all be behind me and I will be a SURVIVOR!!!!

CHEMO IS OVER...

  

I CAN'T BELIEVE IT, IT'S ACTUALLY OVER!!!! When I began this journey 6 months ago everything seemed so overwhelming and so far away. We were going to multiple dr.s appointments each week for months getting pumped full of information and plans. Chemo seemed so far away. Now, by the grace of God, it's over and I'm done with chemo!! When I walked in the Cancer Center December 13th for my first cycle, I was so nervous, not knowing what to expect and not knowing how I was going to feel in the weeks between that treatment and the next. The first cycle was a little rough considering I didn't have my port yet so they had to stick me multiple times to draw blood then again to start the chemo infusion. I was already fairly bruised by the time I left and said that I had to have my port by the next treatment and I did. The first 3 weeks between treatments went pretty well. I did have some side effects that were unpleasant but I actually felt pretty good once they subsided. When I returned for my 2nd cycle and reported my side effects they told me that my fatigue and some of the other symptoms would be cumulative meaning that with each treatment they would continue building in my system and I would probably feel worse and worse and more and more tired each time. Well, cumulative it has been but I will say, it has all been worth it so far to beat cancer! So, as I mentioned, chemo is over and it officially ended March 28, 2014!!!!

LAST CHEMO...CHECK!!

Genetic Testing...

While in chemo of Friday I received a call from my Genetic Counselor Kaylee. After speaking with her in February I decided to go ahead with the BreastNext genetic testing panel which would test 18 genes. By testing these 18 genes I would know if I am at risk for any other types of cancer and I may also find out where my breast cancer came from if there are any mutations. I was hoping that there would be ZERO mutations because of course I don't want to be at an increased risk for other cancers but then again I was kind of hoping to have a mutation on that breast cancer gene because I wanted to know where my cancer came from. Well, the results are in and I couldn't be happier!! Analyses of 18 genes was NEGATIVE and I was found to NOT be a carrier of a mutation for any of the genes. This means that I do not have the associated increased risks for breast and other cancers associated with these genes!! With that being said, since there was no mutation on the breast cancer gene, so we still don't know where my cancer came from. However, I am ok with that because that also means I am not at an increased risk for it to come back. That also means that this cancer had to come from something environmental or something I have ingested which is scary! 

What's next...

Monday, April 7 we will meet with the Radiation Oncologist. I have many questions for him and am uncertain that radiation is the way I want to go. There are so many long term effects and I am not sure I want to be part of those. I will hear him out though and get my questions answered then make my decision from there. If I do decide to move forward with radiation, it would start in about 4 weeks. Once it is complete 6 weeks later I could potentially begin reconstruction next year sometime. If I decide to not move forward with radiation, I will be able to contact my Plastic Surgeon and move forward with reconstruction in the next few months. So, we shall see :)